I forgot to mention that yesterday the heliox tank vacated from Ethan's room. He's been off since Friday night I think. Yippee.
co2 86 today, but Dr Nau isn't particularly worried about it. He's still on Vapotherm of 2; we may try regular cannula next week. Today he's starting to wean back towards every other day steroids. Yesterday he got 12 mg. Today he got 4. Hopefully tomorrow will be a good day.
Ethan has been doing a great job with his bottles. He's looking a little tired today, but he's still taking 70-80 cc's in 10 minutes or so. The little guy has his daddy's skill of opening up his throat and pouring down the beer. Um, just kidding. He does, however, still get mad if you don't get his bottle to him soon enough!
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